Ulcerative colitis

[Thewatchbloke]

Sorry to hear that, Duncan. Hope all is going to plan though.

Watching dad slowly slip away. The feeling of complete and utter helplessness is crushing.

[bparker170]

Watching dad slowly slip away. The feeling of complete and utter helplessness is crushing.

Know how you feel Duncan, my Father in law passed away last month after a very brief struggle, 5 weeks from diagnosis to death. It was an awful experience watching him decline so quickly. Best wishes mate.

[Passenger]

Thanks all. Feeling a bit sorry for myself if I'm honest - need to just get on with it, though, and whinging isn't going to help.

Dude you were apparently 2 weeks away from dead and now have a second chance...buck up man.

[ed335d]

Only just seen this thread Tony (and now explains the Friday thread picture). Chin up and hope your recuperation goes without a hitch.

[learningtofly]

Watching dad slowly slip away. The feeling of complete and utter helplessness is crushing.

So sorry, Duncan - thoughts are with you.

[Chinnock]

Best wishes Tony, just picked up on this thread also. Not so regular a visitor these days!

Here’s to a speedy recovery mate, and second chances!

[Neil.C]

Watching dad slowly slip away. The feeling of complete and utter helplessness is crushing.

So sorry to hear this Dunc, it's a truly horrible experience.

[Neil.C]

Thanks all. Feeling a bit sorry for myself if I'm honest - need to just get on with it, though, and whinging isn't going to help.

I find it helps a bit Tone.

You're entitled.

[learningtofly]

Just saw this.
Wish you a speedy recovery,Tony
Assume a panproctocolectomy with an ileostomy.
BTW, you will need to clear your inbox when you get a chance but you have more important things to do like getting back on your feet and getting home.
All the best.

Sorry Raj - nothing quite so extreme, but a full colectomy as well. There is still a stump from my colon, which at some point I’ll need to discuss with the IBD team in terms of potential removal. I think that’s a year or two in the future though.

[bmpf]

I’m sorry it’s taken so long for me to get round to this thread. But thoughts are with you, Tony, and I’m glad you managed to get treatment in time considering how unwell you were. I wish you all the best for a strong recovery from all of this. Take care.


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[maseman]

All the best with your recovery Tony. I too have UC and am on my 3rd 'mab treatment. It's been working well for the last 3 years but inflammation markers look like they are
starting to rise. A mate of mine had his colon removed last year and has a bag fitted. It has totally changed his life for the better. I hope you manage to have the same outcome.
Regards,
maseman

[learningtofly]

I’m sorry it’s taken so long for me to get round to this thread. But thoughts are with you, Tony, and I’m glad you managed to get treatment in time considering how unwell you were. I wish you all the best for a strong recovery from all of this. Take care.

Thank you!

All the best with your recovery Tony. I too have UC and am on my 3rd 'mab treatment. It's been working well for the last 3 years but inflammation markers look like they are
starting to rise. A mate of mine had his colon removed last year and has a bag fitted. It has totally changed his life for the better. I hope you manage to have the same outcome.
Regards,
maseman

Thanks, and good luck with yours. Hoe many biologic options do you have left?

Noted regarding your friend, which is reassuring.

[Snowdon]

Sorry to hear all this Tony

I hadn't checked in the thread for a while and didn't realise you needed or indeed you'd had surgery. Good to read that you're home and improving

I'm not that far from you. If you need anything, do let me know. Would be good to see you

[learningtofly]

Sorry to hear all this Tony

I hadn't checked in the thread for a while and didn't realise you needed or indeed you'd had surgery. Good to read that you're home and improving

I'm not that far from you. If you need anything, do let me know. Would be good to see you

That’s very kind of you indeed, thank you.

[j90rdn]

Just revisiting this forum after many years away, and saw this post.

Although not completely the same, I was diagnosed with Crohn's disease roughly 15 years ago, after a few years of suffering severe stomach cramps. Went through many types of diagnosis and medication before finding something that helps keep flare ups both infrequent and manageable. I'm currently on fortnightly Hymeria self administered injections and it's effectively given me my life back.

If there's anything you need to ask just shout, or if anyone else is going through something similar feel free to PM me.

[learningtofly]

Just revisiting this forum after many years away, and saw this post.

Although not completely the same, I was diagnosed with Crohn's disease roughly 15 years ago, after a few years of suffering severe stomach cramps. Went through many types of diagnosis and medication before finding something that helps keep flare ups both infrequent and manageable. I'm currently on fortnightly Hymeria self administered injections and it's effectively given me my life back.

If there's anything you need to ask just shout, or if anyone else is going through something similar feel free to PM me.

Very happy for you that your Chrohn’s is under control. Long may it continue.

I've now gone almost three months since surgery, and my weight has increased from 7st7lbs to 9st10lbs, and still increasing steadily. Still got the leg/foot issue but I’m now seeing a physio to treat that. Otherwise, I’m just getting used to managing the stoma with all that entails. It really is a bit of a challenge, but I need to come to terms with it as it’s not going to change.

[Der Amf]

my weight has increased from 7st7lbs to 9st10lbs.

fantastic news

[learningtofly]

fantastic news

Thank you. I genuinely wanted to cry when I looked in the mirror, so the gain has done wonders for my mental health.

[Halitosis]

Good to hear of your weight recovery Tony. Keep on keeping on

[Mj2k]

Thank you. I genuinely wanted to cry when I looked in the mirror, so the gain has done wonders for my mental health.

Fantastic news mate, can only imagine the joy for you!

Without belittling your gain, I still recall my post depression weight gain with utter joy. Alas I’m now at the not losing end of the scale & need to address that!

Stoma is a hard adjustment, but will become second nature with time from the lady I worked with. I still recall sitting with my wife post op from an abyss in her lower spine, hearing a patient being informed of what had to be done & her bag.

Her sobbing broke my heart, and I will never forget that. You’ve been so strong through all this, you’re going to adapt to the new norm & be loading the miles on the bike (s) through summer, really hoping that for you, Tony.


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[dustybottoms]

Great to see your update, keep being strong mate!

[learningtofly]

Good to hear of your weight recovery Tony. Keep on keeping on

Fantastic news mate, can only imagine the joy for you!

Without belittling your gain, I still recall my post depression weight gain with utter joy. Alas I’m now at the not losing end of the scale & need to address that!

Stoma is a hard adjustment, but will become second nature with time from the lady I worked with. I still recall sitting with my wife post op from an abyss in her lower spine, hearing a patient being informed of what had to be done & her bag.

Her sobbing broke my heart, and I will never forget that. You’ve been so strong through all this, you’re going to adapt to the new norm & be loading the miles on the bike (s) through summer, really hoping that for you, Tony.


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Great to see your update, keep being strong mate!

Thanks all!

Defnitiely hoping to get some mileage on the bike over the summer, Matt, and will be spending some time in Wales on it during late June.